Wednesday, January 27, 2010

Lily is in her home LILYPAD

Okay so I know this is out of order of Lily's progress, but I am so excited that she finally got to go home on January 22, 2010!!! The day after her due date and 4 days before her Mommy's birthday! Plus I was able to fly up to go home with her. She is so awesome I can't stand it. All of her little coos and moans and squeals and cries are great! I imagine some of them drive her Mommy and Daddy crazy at the wrong time of the day but I know they are happy that she is home. Anyway she is settling in pretty darn good. And I've taken a bunch of pictures that are on our website. So I'm not posting them here too.
So proud of Jamie and Josh and how well they are doing with little Lily! Love them all sooooo much!!!
That's it for now.
Love to all! Gummie Burnie

Monday, January 11, 2010

Lily is growing in a big way!!!


December 1, 2009 Today Lily weighed in at 3 pounds 9 ounces!! That is awesome! She is eating 35 ml and doing very well. They examind her eyes this morning and they look good. I'm not sure how you can examine eyes of a baby. I guess you can look at them and see if there are any oddities in the back of the eye and make sure there is no bleeding and stuff. She sure does focus on her Mommy when she talks to her in the videos. It is so cool to see her bond with her Mommy! Lily is still on her canula at 35 - 40 %. Hopefully they can lower that and eventually get her off of it. But we won't rush her. We are just thrilled that she is doing so well and happy to look at her sweet little face.
December 14 Lily is doing well. Her breathing is still a little fast but they have decided to start bottle feeding her a little anyway. Her head ultrasound was excellent. The fluid is gone and the doctors are pleased with how she looks! Jamie said that Lily got a little excited from the bottle feeding and had a little trouble with that. But she does really well with nursing. I am so proud of my little girl and how well she is taking care of her little girl!

CPAP? Learning new words and phrases

November 24, 2009 Another day for our little Lily-bean and more progress. She is now going off of the CPAP machine and onto canula every 3 hours. She is still eating about the same and doing very well with that.
On November 28, 2009 Lily had a blood transfusion because she is a little anemic. The doctors think that will help with her breathing as well. Being on the CPAP and having her blood gases a little off make it harder for her to maintain proper blood levels so it's not uncommon for preemies to be anemic.
November 30 they did another ultrasound on Lily's brain. There was no change which is good. They'll continue to watch it to make sure she is doing well. They will do another one in a month. As long as there is no change and the blood resolves itself and the fluid drains they won't have to put in a shunt to drain the fluid. Then hopefully there won't be any permanent damage from where the fluid had been laying. So far they don't see any signs of problems. Lily is moving very well and her eyes and hearing are good.
Way to go Princess Lily!!! We love you and are very proud of you!