November 3, 2009 John sent an update at 8:35 AM that Lily was doing good. Half of the jaundice lights were off and maybe turn rest off soon. They were still working on weaning her off of the oscillating ventillator in hopes of converting back to standard ventillator. The 2:00 AM CO2 level was 37. Another check due around 9:00 AM. By 10:00 AM Lily was on the regular ventillator and were using very low settings. They may have to turn it up some if her CO2 levels aren't good but hoping to keep it low and possibly take her off all together depending on how she responds. They will probably use jaundice lights some again tonight. They listened to her heart and she continues to sound good.
Around 12:30 PM the nurse gave Lily some pink bedding. Before that she had plain white. It was nice to get some color in the bed. Made her seem more like a baby. It helped brighten the mood and make it seem less stressful. All those wires and tubes hooked up to her could be a bit intimidating so anything that gave a baby feel to her helped.
Around 7:47 PM Lily's CO2 level was 41 which is great. They are talking of lowering the machine even more in hopes of getting her off it and breathing on her own. She is doing great with the meds for her heart, no problems with the kidneys from the medicine.
I think this was the first night everyone actually went home for a good nights sleep and left her alone at the hospital. It was a bit difficult to do but we all needed the rest. Especially Jamie because she was still recovering from all the trauma that her body had gone through with the pre-eclapmsia and then the C-section. We know there is a long road ahead but everything possible is being done to help Lily grow into a strong little girl.
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